Links
The following is a list of links to various websites that might be of help to people with fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS).
The
American Fibromyalgia Syndrome Association (AFSA) is a 501(c)3 nonprofit
organization dedicated to research, education, and patient advocacy for fibromyalgia
and chronic fatigue syndrome. AFSA is the only charitable organization whose
primary mission is to seed research on these conditions. Over 90% of contributions
go directly toward their mission.
Website: www.afsafund.org
The United States Department of Justice Americans With Disabilities Act (ADA)
Website: www.ada.gov
Allsup, Inc. - Representatives that specialize in Social Security Disability Insurance (SSDI) benefits.
Website: www.allsup.com | Phone: (800) 279-4357
Want to know who your representative is in the House, or who your two U.S. Senators are? You can find out how to reach them and what committees they serve on at the websites below. You may also look up the details of other powerful people in Congress as well.
House of Representatives: www.house.gov
United States Senate: www.senate.gov
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy.
Website: www.sleepfoundation.org
The Podell and King Medical Practice. Dr. Podell is one of the nation's leading experts on chronic fatigue, fibromyalgia, and nutritional, complementary alternative medicine. This site also contains information on practical "tests" to substantiate your fibromyalgia disability.
Website: www.drpodell.org
The International Association for Chronic Fatigue Syndrome (IACFS) is a nonprofit organization that promotes physician education and increased awareness of chronic fatigue syndrome.
Website: www.aacfs.org
The International Academy of Compounding Pharmacists. This organization provides a search tool for finding a compounding pharmacist nearest you.
Website: www.iacprx.org
The American Massage Therapy Association can assist you in finding a good massage therapist in your area. Visit their site below.
Website: www.amtamassage.org
Haworth Medical Press
10 Alice Street
Binghamton, NY 13904
(800) 342-9678
Publisher of two peer-reviewed medical journals relating to musculoskeletal
pain, fibromyalgia, and chronic fatigue syndrome.
Journal of Musculoskeletal Pain - $75/yr
Journal of the Chronic Fatigue Syndrome - $60/yr
Website: www.haworthpress.com
The Centers for Disease Control and Prevention (CDC) 1994 chronic fatigue syndrome criteria article from Annuals of Internal Medicine can be downloaded at the site below.
Website: www.cdc.gov/cfs/cfsdefinition.htm
Restless Legs Syndrome Foundation, Inc.
304 Glenwood Ave.
Raleigh, NC 27603-1455
(919) 834-0821
The RLS association publishes a quarterly newsletter for $25.
Website: www.rls.org
Headache Help - a website developed by Lawrence Robbins, M.D., a neurologist who runs a headache clinic in Illinois and who also suffers with chronic, daily headache pain. It is devoted to helping patients treat their headaches and to keep patients/physicians current on the latest remedies for migraine and tension-type headaches.
Website: www.headachedrugs.com
Men with Fibromyalgia - The author of this website feels that men have been "quiet too long." This site addresses various issues surrounding men and fibromyalgia. If you are a man with fibromyalgia or have a spouse or male friend with the illness, visit this website. Women always welcome.
Website: www.menwithfibro.com
FM-CFS Canada - For support groups and help throughout Canada, visit the FM-CFS Canada. Resources in English and French.
Website: www.fm-cfs.ca
But You Don't Look Sick? Visit this site for great articles, message boards, and the web's best "Get Well Gifts" store.
Website: www.butyoudontlooksick.com
The following are websites that provide information on chronic pain treatments and prescription guidelines:
The American Pain Society (APS)
www.ampainsoc.orgPartners Against Pain (provides public info on chronic pain treatment) www.partnersagainstpain.com
Pain and Policy Studies Group (a site hosted by University of Wisconsin) www.painpolicy.wisc.edu
