Comments on: Personalized Fibromyalgia Care

By: Franciele

Franciele — Tue, 14 Aug 2012 22:50:17 +0000

Sigh what can I say? None have worked for me. Most are bad from the get go and all of them have ugly side effects. As I said to roentarre (he’s a doctor) above I got to a place where I could no longer live my life constantly looking for yet another new drug that will have side effects and won’t be effective. I threw in the towel and went drug free. {{HUG}}

By: Lori Kindberg

Lori Kindberg — Tue, 07 Aug 2012 13:24:08 +0000

Cindi, I really can honestly relate to you. I also am a teacher(used to teach 2nd grade, until my school closed. In a few weeks I will be at a different school, teaching 1st grade. I also have the brain fog and fatigue issues like you. My memory is terrible, as well as my concentration. I have a hard time learning new info.. I fear losing my job because of these issues. Please write back!

By: SJ Wolfe

SJ Wolfe — Mon, 18 Jun 2012 14:29:19 +0000

Anyone else getting dual diganoses of FMS and polymyalgia rheumatica? I see a couple here, is this a common overlap?

By: Susan Evans

Susan Evans — Sat, 09 Jun 2012 12:08:14 +0000

I’ve come to accept that with this illness the first thing I have to do is ACCEPT that I have it and accept my present reality. Pay attention to my body and what it tells me. I do whatever works and it changes because my symptoms & other illness add stress to fibro, trauma etc. I now have all symptoms but that wasn’t always true. I write my Dr. letters, progress reports,she knows MY illness…

By: Pam

Pam — Sat, 28 Apr 2012 14:17:50 +0000

Reading all these comments was like reading a description of all my own symptoms. One of the most frustrating for me is the rapidity with which the symptoms can change. Fatigue, IBS, pain everywhere. Now in my jaw! Sjoegren’s test negative, also neg lupus test. Osteoarthritis and slight to moderate scoliosis. I can feel great this afternoon, then drained/achy tonight & for the next week. Whew!

By: malissa

malissa — Wed, 28 Mar 2012 00:41:07 +0000

What is neuropathic pain? and what do you take for it? My symptoms are like most of everyone’s. I take a strong pain medicine to help me fuction throughout the day. It cuts the crazy pain and helps me tiredly go through my day, as I have to work full-time and enjoy working over staying home sick.

By: Shadi

Shadi — Fri, 16 Mar 2012 19:38:15 +0000

when you’re going through hell, don’t stop and set up camp . While some find total relief, depending on your situation you may find that success is defined as managing your pain not eliminating it. Your body will tell you what hurts and what feels good. Start with the basics are you sitting, working, lifting, even lying down. Your brain can be pain’s worst enemy. Even the best doctor is only as good as the information that you can provide to them.

By: Antonio

Antonio — Fri, 16 Mar 2012 16:44:54 +0000

My option in this situation, and the option I can’t stress enough is option three, FIND ANOTHER DOCTOR.In my experience, the majority of patients do not understand that when you go to the doctor you are paying that doctor for a service. You have made an appointment and engaged a doctor to service you and your needs. You are paying for expertise and experience, This should be respected, there’s a reason we aren’t all doctors, but you should also be respected as a customer.You are not paying to have yourself not taken seriously.

By: Kenichirou

Kenichirou — Fri, 16 Mar 2012 12:29:28 +0000

MistyXoXo Posted on Thanks for the post, Clarice. My doctor first ucspested that I might have arthritis, but the hand x-rays came back normal and that’s when he considered Lupus. I hope you get through the winter without too much pain!

By: Val

Val — Fri, 09 Mar 2012 17:43:21 +0000

I will be seeing a neurologist early May as I now believe it is not a condition my Rheumatologist can help me with. All he wanted to do was put me on pain meds. I refused but go on anti flamitory meds every couple of years for about 1 to 4 weeks. This gives me some relief for some of my facial and neck pain. Helps me think I am not going insane with this condition. But I think it is nerological so thanks for all your comments.