Comments on: Disease Severity Markers?

By: Lillian

Lillian — Tue, 05 Feb 2013 00:02:12 +0000

Excellent research hope more ones and fine a cure for this conditions that’s jelling me.

By: nicknnora

nicknnora — Mon, 04 Feb 2013 17:39:19 +0000

I was diagnosed with FM 8yrs ago. At first it was almost impossible to work; I would work one day and be in bed the next. I went to the FM/CFS Clinic and they helped me slowly get back to work FT. It was expensive, but it saved my job. Then I tried Lyrica, it was amazing. I still have pain but it is now more manageable with fewer flares that keep me home from work. I have more of my life back now!

By: Shelley

Shelley — Sun, 03 Feb 2013 17:46:10 +0000

I have fibro/chronic fatigue, secondary to Fifths Disease..have IBS, migraines, ulcers, Degenerative Disc Disease, buldging discs..which alone causes tremendous pain! chronic muscle spasms…joint pain, memory loss, ulcers, and more…i too, like many others cannot work. I have filed for disability only to be denied. I agree that Dr’s Do NOT know how crippling this disease can be.

By: Penny

Penny — Sun, 03 Feb 2013 14:50:04 +0000

I know what you mean about the isolation. It’s so hard to make plans because you don’t know how your going to feel from 1hr to the next. My girlfriends do understand and they always check in with me just before we’re to go out. Hubby too is use to it. I’m lucky for his support even in the first 3yrs of my illness when no one knew what was going on.

By: Penny

Penny — Sun, 03 Feb 2013 14:44:27 +0000

This research looks very promising. I hope it’s not to long before we can be tested. The rheumatologist that dx’d me does not want to be involved with treatment. He said to cont. to see my Pain Management doc so that I can exercise more. I’m greatful she is very good. I’ve been told I’ve had this for the last 20yrs. but as a child I always had strange aches and pains that no one could figure…

By: Stephanie

Stephanie — Sun, 03 Feb 2013 05:09:38 +0000

I felt somewhat better reading everyone’s comments. I’m so sick of being in pain. I’m sure my family is sick of hearing me complain. I pray for better help everyday. I feel useless. I want to do this and that, but I can’t. And until others know this pain, they have no idea how we suffer!

By: Lynne

Lynne — Sun, 03 Feb 2013 00:11:32 +0000

I am a Family Physician who also has Fibromyalgia. I understand what you are all going through as I deal with it every day of my life. I have had to give up practicing medicine because I simply can’t do it any more. It’s true that most MD’s don’t know anything about it and Rheumatologists (RA’s) are the most likely to be able to help.

By: Kathi

Kathi — Sat, 02 Feb 2013 20:09:03 +0000

I can especially relate to Augustine who mentions how hard she tries, I literally do my housework, cooking, or gardening until i drop and have to be lead to the couch to crash…. and quite often I have to hang my head to eat, and when bathing I have to close my eyes to conserve energy.
Everything is done with a struggle, every day. And people think yu are making it all up since you look good…

By: Jill Risselman

Jill Risselman — Sat, 02 Feb 2013 15:59:00 +0000

I do get it Augustine! And Thank God that we can share our trial and tribulations of all! God is with us and helps us to Overcome so many things! Unfortunately, although I have been deeply praying and crying out…. there are still no Answers! My pain and my desire are 2 different things! Desire is so strong to do! Fibro, CFS, Raynaun’s & Hashimoto’s all destroy function! But I know…

By: Kim

Kim — Sat, 02 Feb 2013 14:42:31 +0000

I truly know how all of you feel. I have been a Fibro/Chronic Fatigue patient for 12 years now. I know all your pain. I suffer with pain and muscle spasms almost every night. I have to sleep with a electric blanket every night to try to ease my pain. I also have to get up during the night and soak in a hot bath to relieve the pain. It is a horrible disease. Someone needs to help us out. God bless